The UK Data Service was a clear example of a data repository with infrastructure to offer data owners multiple data publishing pathways. of the legal and governance problems that could delay and frustrate trials’ data sharing, and practical solutions to data owners’ questions about the technical side of data sharing – formats, metadata, coding frames, future-proofing, and data security. Researchers at the University of Liverpool began exploring a collaboration between Cochrane and the Service to better understand what would be required for Cochrane to enable data sharing.
Over a six-month period, Liverpool researchers uk rcs data and the Service exchanged calls and procedures and documentation relating to data sharing. The two centres agreed it would be beneficial to design an afternoon workshop for clinical trials’ leads and data managers at the Liverpool Women’s hospital and the University of Liverpool, as part of the NIHR public engagement component of the Cochrane programme grant. The focus of the workshop would be to move beyond legal agreements, and dig down into the actual and perceived risks in a shared trial dataset, and in outputs arising from reuse of data. To avoid sounding dull to potential audiences, the data sharing workshop was given a playful name, Get to it! Clinical data sharing myth-busting and strategy.
The workshop took place on 5 July on the site of the Liverpool Women’s Hospital education centre with around 45 in attendance.